Monday at Primary's

This is his picc line.  Sorry if it is too graphic.  At the bottom was a normal looking IV tube for medicine, but this is the top at entry of the skin.

Monday we were supposed to have the MRI early, but everything was pushed back and we didn't get in until just after noon.  Max spent the morning playing in the playroom.  He walked with his cruches, but didn't use them much other than holding them.  He was doing really well.   He went in for the MRI and had to be sedated for this as well.  This time they had a different option and didn't have to use the stuff that made his vision blurred.  After the MRI we waited around in his room for information on the results.  We also trained on how to do the picc line and watched them change his dressing should we have to do that.  We were also trained on what to do if it ever broke or came out of his arm.

Finally the results came back about the MRI and his bones were clear.  The immune/genetic test came back clear as well.  This would then mean we could get out of the hospital.  They did this huge discharge sheet where they had arranged appointments for all the follow-ups and gave us phone numbers for everywhere.  We were to see our family doctor, a Physical Therapist, the surgeon and infectious disease after 2 weeks.  We would also have home care.  They would provide the IV antibiotics and a nurse would come teach us the specific protocol for the home drug.  A nurse would also come weekly to change his dressings and to pull blood for tests.

We were finally sent on our way around 5 p.m.  Such a relief.